I am twenty years old, and I have two beautiful children. In February this year I began to get a rash which covered my entire face and made numerous circular rashes all over my body. I got referred to the conquest after my doctor said to could be infected eczema, the hospital saw me, after leaving me looking like a monster in the waiting area for over an hour after an urgent referral.
I was told by a doctor I actually had impetigo, although was given nasal treatment and antibiotics for mrsa! Then left to wait again for these medicines in the waiting area with numerous other patients who could have contracted this disease. There was blood on one of the armchairs, and I was left for hours waiting looking the way I did and suffered humiliation and fear, my skin has always been beautiful. I eventually got home, after roughly two weeks the rash started to disappear. And then came back again with a vengeance, I rang the hospital many times as it was truly horrific. I was told the earliest “urgent appointment” was two days away. Even though I was told if my symptoms worsened they would see me straight away. I eventually saw a specialist in skin, who gave me creams and more antibiotics.
The rash continued to come back every time there was even a little improvement. I was ashamed to leave my home, my children were scared of the sight of me, and generally my rash was accompanied by fever and pain of my joints. I continued to try, I begged the skin doctor please help me. He then took a skin biopsy and told me to come off the antibiotics as they wouldn’t help me, he didn’t tell me why he was taking a biopsy. I later found out he was trying to diagnose lupus. The results came back negative, and my skin rash had cleared a little through antimalarials, so he said to make an appointment and he would see me in 5 weeks. I was so frightened of looking and feeling this way for the rest of my life, and i received in the post two weeks later for in 4 MONTHS time, I just didn’t know what to do.
My joints are continually getting worse, my skin rash comes back after every menstrual period and nobody seems to care. I have lost all faith in the NHS and I just don’t know what to do anymore