Arrived in good time for appointment, first on the list.
So why did I have to wait 15 minutes.
Nurse asked if it was my first visit, explained it was my third.
My notes were not available.
Had to give them a quick explanation of why I was there, whilst sitting in the waiting room.
They went off, waited another five minutes, they kept telling me that my treatment should be done at home by the district nurses, and would not or could not understand what I was saying, that the district nurse has said they won’t do it as they can’t guarantee the hygiene needed at home.
This was also confirmed by the practice nurse at my GP surgery.
The hospital appointments were arranged by the urology cancer nurse specialist.
If the nurse had my notes they would have seen this.
During the treatment they went through telling me again that it should be done by the district nurse, then admitted that they had had several similar complaints from other patients about the district nurse service, or lack of. So why tell me that I should be having them visit weekly doing bladder washes if they know they don’t?
Also, they attempted to fit a different bag from the one they had just removed, and when I asked for a short bag, as this was what my consultant had said I should be using, they said they were not the usual one.
I know that, but they work for me, and surely my needs as the patient are important?
Read your own poster about listening to the patients.
I did not see the nurse with my notes, so have no idea if my comments about the consultant’s instructions are recorded or that the cancer nurse specialist organised my treatment, or if the correct equipment is to be offered.
So will I have to go through this again at my next appointment?
I left with a letter with the appointment date and time, but they did not bother to complete my name and hospital number.
Not exactly efficient.
I asked about a different system that the consultant had mentioned in my last outpatient appointment.
The nurse gave me two, one opened so not sterile, and told me to speak to my GP.
There was no literature offered to read.
I had a quick demonstration and that was all.