Special Care for My Special Needs Daughter

Thank you Childrens A&E at the LGI for your excellent and caring service after my daughter, who has special needs, was brought in scared and distressed after her first severe epileptic fit. Despite being extremely busy every staff member who saw us showed kindness and consideration and treated my daughter with dignity and respect. I saw this same consideration time and time again for other children and their parents during our time in the unit. Nobody wants to spend time in an A&E, but you made this experience a lot easier than it could have been.


Excellent care

I was extremely pleased with the treatment that I received in the Doncaster Royal Infirmary Hospital. I had excess water on my lungs and breathing problems. They took lots of tests and changed my medication and not I feel so much better. I have to go back for an appointment in late May. I felt the care from the nurses and doctors that I received was excellent.


Chronic pain – wonderful physio team at Whittington Hospital London

I have spent the last 12 years in chronic pain, to the extent that I was unable to carry more than a tiny handbag, had difficulty walking and spent a large amount of my time immobile in bed, feeling as if I was being tortured. I was only able to keep my job due to very supportive managers who let me work from home. My relationship with my partner was suffering and I was unable to maintain friendships, as the pain and fatigue stopped me going out and speaking on the phone. I was classified as having fibromyalgia.

I had several scans and tests, a year’s basic physio in Walthamstow which made things worse, and eventually ended up on a range of heavy duty painkillers. My psychological resilience and fatigue got worse and worse and I recognised that if things didn’t improve I would have to give up work.

Although I been told consistently by GPs that there was nothing more they could do for me, I made one last attempt to ask for help from a new and more sympathetic GP at my surgery (Dr Mayur Gor). I had heard from a friend with rheumatoid arthritis that structured exercise programmes were available and I thought this might be helpful, as I knew that the pain was often worse after exercise.

I asked about structured exercise and Dr Gor referred me for physiotherapy assessment, as well as to a rheumatologist. At the physiotherapy assessment I mentioned that my joints were fairly floppy and that I was poorly co-ordinated (I had been reading that chronic pain was sometimes associated with these characteristics.) Juliet Benson, who assessed me, said that she thought the issue was hypermobile joints. She referred me to her colleague Janis Ross for treatment. (This classification of joint hypermobility was confirmed by a consultant rheumatologist, who was clearly disappointed that I did not have arthritis and therefore had nothing to say to me.)

Janis, on the other hand, set up a programme of exercise and activities which has transformed my life over the last nine months or so. From the beginning she was sympathetic, responsive and optimistic. Much of our sessions were taken up with talking through my fears and explaining why we were trying different things (I had become afraid of physical activity, as doing anything hurt so much). Janis was able to explain and apply the latest knowledge on pain, adapting a range of approaches till we found what helped me. I gradually came to understand that because my joints don’t ‘bite’ at the correct point, my muscles are often being damaged because they are stretching too far with every movement. This causes pain and weakness. The more it goes on without intervention, the more the nervous system ramps up the pain signals, to the extent that everything becomes excruciating. Another issue with joint hypermobility is that it is linked to what can be described as a confused nervous system, which in the end leads to only the more ‘obvious’ large muscles being used instead of core muscles which should be taking more of the strain. These large muscles, such as those at the top of the shoulders, then scream from over-use. The exercises Janis had me doing strengthened core muscles and took the strain off the large muscles, and got me using my joints differently to reduce muscle stretching. We went through a lot of trial and error as some exercises initially were too much for me and made things worse, but Janis’s great strength was in being able to continually adapt and refine activities so they worked for me.

I can hardly believe the difference now. Although I am far from ‘recovered’ and will always have to monitor myself carefully, I can now imagine what it might be like to live a normal life. I can do much of the cooking and shopping that my partner was left with before; I can cope far better with the travel that my job requires; I can work longer hours; I am restarting friendships; I can walk and even run. I am still taking painkillers and am still tired a lot of the time, but my drug usage is reducing and I no longer feel on the edge of giving up. This has all been helped by the extra support that Janis has given me. As well as helping me to understand how to manage my condition, Janis has referred me to very useful counselling and to other support services and groups. Janis has bent over backwards to keep me on her client list for a long period, and now that she is going on a well-earned sabbatical has come up with a flexible arrangement whereby I can call up a colleague for help if I have problems. Janis has gone well beyond the call of duty and as a result has transformed my life.

However, it hasn’t just been Janis – the entire physiotherapy team at the Whittington Hospital has been great, particularly the helpful receptionists who actually pick up the phone and will always pass on messages or be flexible with appointments. There must also be excellent team leadership in place if people are able to offer such patient-centred care. I feel sad that the GPs and consultants I have seen weren’t able to offer me the care I needed for so long, but I am very glad to have finally experienced how well the NHS can operate at times.


Tumour worry

About 2 years ago I had a very large bladder tumour,after a week in hospital and 2 operations the tumour was removed.

This was the first time I had ever been in hospital and at 60 years of age I think I have been lucky to have never had a problem in the past.

All the staff at rotherham hospital were fantastic,even the consultant had a good sense of humour (his nickname was elvis).

I was back for another checkup last week and another small tumour was found,I was given the choice of instant removal or book in at a later date,If instant removal I was told some pain could not be avoided but I thought it easier to have it removed while I was there,I could easily put up with the small amount of pain to know that the tumour was removed the same day.

Again I thought all the staff did an excellent job,If I could have gone 3 years with no sign of another tumour I would then be discharged but I must be going through an unlucky patch or is it just old age ?- not possible as I am just a `young lad`


Excellent care during labour at QMC Labour Suite

I was recently a patient during labour in the Queens Medical Centre’s Labour Suite. I went into hospital in the early hours of monday morning. I had 2 great midwives throughout my 19 hours of labour, one of which was an excellent student midwife. My baby arrived safely monday afternoon. The care I received throughout labour was excellent.


Thank you DRI ward 16 staff

After having a stroke, I was admitted to ward 16 at the Doncaster Royal Infirmary. I received brilliant care from all staff on the ward.

I was very impressed with the way the staff cared for the older patients – they were very kind and sensitive; the way they spoke to the patients was excellent. The aftercare has also been excellent. Thank you for all the great care.



5 years ago I was an inhabitant of Ward1 for 6 months.Sent to Wansbeck for complicated hip surgery I had a “pacer” fitted whilst biopsy reports were pending. developed horrific bed sores (photos taken) and MRSA and sent back to Ward1 until safe to have the op.I received excellent attention and care from everyone,Staff, Medics, Cleaners ,Pet dog,Physios!!!Pharmasists ,Occupational Therapists etc.As I was flat on my back most of the time I appreciated all the care and expertise and humour too. Since then I was on ICU and Ward 2for a short time.. same care and attention. So why this message (having discovered I can send one?) I now attend 2 Clinics, Warfarin,regularly, and every 2 years or so,Orthopaedic. and my comment… seating in the waiting area at Hexham General..I know that a lot of outpatients at those Clinics find it extremely difficult to use those low sofa seats. I know there are a few higher chairs..yesterday only two, and I know others have commented I use 2 sticks to get about and can just manage to get up from the low seats but so many have a real struggle, and many at those clinics are elderly. One could fetch seats from the cafeteria but I don’t think that would be popular! This is my only complaint .We are so lucky to have such an excellent hospital ..I owe it so much.


Grateful for hardworking staff of Nottingham University Hospitals

As a recent patient I am grateful for the opportunity to show my gratitude for the excellent treatment, operation and aftercare that I received.

I cannot compliment too highly the nursing staff and auxilliaries who worked so hard day and night to ensure my health and wellbeing during my stay in hospital, always checking carefully my name, date of birth and patient number even though they knew who I was.

Also their hygene was exemplary, always using the hand wash after every treatment for instance, small details that gave great peace of mind, bearing in mind I was looking for assurance at every turn, and I certainly got it.

I found that the food was quite good, although at times could have been warmer, but bearing in mind the amount of patients they were serving at this large hospital, it must be said, that the food was generally of a very high standard.

I hope these few notes will be of some help to future patients looking for guidence when they have to go into hospital themselves.


Birmingham Women’s Hospital: ward 7 rocks!

I was a day patient on Ward 7 last week and boy was I scared.

The staff treated me with the utmost courtesy, all were very professional and nothing seemed too much for them. The ward (small room housing 2 beds) was immaculately clean and all very organised.

Sylvia was an absolute “angel”, she seemed to appear in my hour of need and escorted me down to theatre. She was there for me when I returned to my room having gone through my procedure.

The theatre staff were absolutely wonderful, how they coped with such a wimp as I is amazing. I can only say that this was my first experience of being in hospital (which at 41 years of age isn’t bad) and one that I shall never forget – and for all the right reasons.

Keep up the excellent work guys and gals on Ward 7, and I think it was theatre 5. God bless you all.