He later found that particles of the stone had gone back into the kidney

He was diagnosed with a stone in the ureter in April and was in considerable pain. He was fitted with a stent and had to wait 6 weeks for an operation to blast the stone, he was hoping this would solve the problem but the pain persisted.

He later found that particles of the stone had gone back into the kidney and that there was much ‘gravel’ still in the ureter and there was possible damage from the stent.

He is still in much pain and very depressed, he is also on a horrendous cocktail of drugs which make him mentally confused. He is concerned about losing his job which he loves and no longer getting paid. Can nothing be done?

frustrated mum

Chemotherapy- Day Unit YPU

The final treatment of my chemotherapy I waited for 5 1/2 hours before being told that although my drugs had been ready, they weren’t brought up and had expired. They then informed me that I would not be able to have chemotherapy on that day. The pharmacy had not sent them up. They told me I would have to have it the next day but I was planning on returning home to see my mum and friends as I only transferred to Birmingham as I am a student.

I was very upset and the nurses were extremely understanding and helpful making sure that the pharmacy stayed open so my drugs could be made. I arrived at the hospital at 11am and left 11. 30pm. At my previous hospital in Kent I was in and out in 2 1/2 hours without fail. I would like to note that at every hospital I have attended it seems to me that the pharmacy are severely understaffed unable to cope with the high volume of patient demand.


Treatment is keeping me mobile

I’ve attended a self help course with arthritis care with Dr Brittain. I have discussed possible pain killers and anti-inflammatory drugs. She helped me in the new year of 2009 when my arthritis became worse. I was sent back to Dr Gaywood who recommended antriptyline in the evening to get me into a good sleep pattern. I would like to have the chance to receive acupuncture to help with hip/knee/foot pains. This is not available on the NHS, this should change. I’ve had pain killing injections in my foot and hip (this is treatment you are referring to). I’m attending the treatment centre seeing Dr Gaywood about my knee locking up. The treatment is ongoing keeping me mobile.


One size fits all protocol – Poor services

Bad services. It’s a one size fits all protocol. Don’t do blood test during the treatment (got OHSS thanks to that) and don’t do beta blood test ( pregnancy test ) relaying only on the drug store tests, if you for instance have a false negative drug store test ( it happens more often then it seems) they say you can stop the drugs, isn’t that risky ?


Neglected on Gynae Ward

I was back and forth from Barnet Early Pregnancy Unit for over two weeks for an ectopic pregnancy. Once it was diagnosed, I was given a choice for surgical tube removal or an injection and close monitoring. I was terrified of losing my reproductive parts and having a major surgery so I opted for the medical management and methotrexate injection.

Unfortunatlely it didn’t work and a week later I had a rupture. I walked into Barnet A&E and told them I had an ectopic and believed I had ruptured and was in extreme pain. After waiting 20 minutes my brother arrived at A&E and was shocked I hadn’t been seen straight away! He demanded they assess me and I was admitted to the emergency gynae ward. Even though they knew I had a life threatening diagnosis they left me with internal bleeding on that ward for over 20 hours with a morphine drip waiting for a simple ultrasound!

I kept asking the nurses when I would get the scan and they said when ultrasound team was ready they would call me. They knew I was in pain and kept offering me drugs. They kept me nil by mouth and kept pumping fluilds and morphine into me. When my fiance arrived the next day he was stunned that I hadn’t been seen and threatened to take me to another hospital right away. The ultrasound team then gave me a scan and said none of the nurses has told them about me!

They found I had a ruptured right tube and internal bleeding and was told I need emergency surgery. My fiance was so angry and didn’t trust Barnet with the surgery after the complete mess they had already made, the doctor kept apologising but we were fed up and I was so frightened, so I self discharged and he took me straight to West Middlesex hospital where they successfully performed emergency laproscopic surgery to remove my right tube and everything was resolved within 6 hours. This was my first experience being hospitalised on the NHS as I’ve had private before. I thought this must be how all NHS services are, but West Middlesex was fantastic. They kept trying to ring Barnet to get my records and no one at Barnet would answer the phones!

I am so angry and shocked by the care at Barnet, the gynaecology ward (Willow Ward) is nurse-led and it seems that non of the staff are accountable to anyone. It wasn’t just me, other ladies were being neglected as well. One lady next to me had lost all feeling from the waist down after an epidural for a hsyterectomy. I witnessed a nurse vernally abuse an elderly patient. It was terrifying. The nurses were rude, loud, had foul attitudes and poor team communication. The outpatient EPU care was fantastic but the care on the ward was absolutely shocking, it was like the Francis report and Mid Staffordshire scandal come to life.

Michelle N

Nursing staff at RHH are a bit disorganised!

I went to see my doctor at the local surgery with what I thought was a minor problem, but was immediately referred to RHH for surgery that evening. The doctor was very caring and thorough in her referral. As an in-patient in RHH (J ward) my experience was quite frustrating! My notes were lost, my drugs/dressings were lost, I blocked a bed all day whilst these were sorted. When I did get discharged RHH’s referral of me to the District Nurse did not reach them so I had to remedy this myself. The District Nurses and surgery nurses were great. I conclude that they have a great community and primary care but the nursing staff at RHH are a bit disorganised!


I appreciated the care and the food after breast cancer mastectomy

I was in 5 days on ward 2

the first couple of days I was so upset emotionally if anyone had asked about my stay I would have been very negative. from the third day onwards when I was feeling a little stronger I was able to really appreciate the care, the food etc.

I think that the drugs (which were necessary) left an awful taste in my mouth, so other patients who had a shorter stay wouldn’t appreciate the care or the food in such a short time. But once you get used to being there, you realise how good they are.


Day Surgery at King’s College Hospital

It started with a shambolic pre-op assessment where the nurse had no knowledge or understanding of my chronic diseases and conditions (which are common), thus was unqualified to answer my questions or address my concerns about whether it was safe for me to have GA. I was told to come back to see someone more qualified (anaesthetist).

I duly took time off work (again). I informed the anaesthetist of my concerns and medical conditions. I commented on the fact the nurse had been out of her depth, to which he responded that she was only accustomed to dealing with “healthy people”. (!)

I informed him I was newly recovered from issues pertaining to a chronic disease, and gave as much information as I could. Despite my higher risk of infection, no antibiotics were offered. Given a number of allergies, I was told I would get intravenous pain relief, but nothing about what pain relief I could take home. Specific questions about the nature of the surgery could not be answered.

I looked at the notes taken down by the nurse and noted my meds were incorrect. I mentioned this, but the details were not corrected. I was told I could drink clear fluids on the day of surgery, something I specifically questioned.

Given my existing lack of confidence in the NHS, I paid to see a private GP to get antibiotics which I commenced prior to surgery, and tried to obtain transdermal pain relief but was unable to. This left me very concerned about the surgery. The nurse had not asked details about vitamins and supplements, but fortunately I knew that some can cause excessive bleeding during surgery, so I stopped taking them.

Day of surgery: I was a nervous wreck (having experienced previous blunders) and had questions I needed answered. I asked a reasonable question about a risk pertaining to surgery – this risk is listed in the booklet I was given at pre assessment so it was a reasonable question. The surgeon became defensive at my questions and even considered calling off surgery.

The anaesthetist (a different one) appeared surprised I was drinking fluids; I explained his colleague had said I could – I got the impression he didn’t believe me. I informed him I was taking my own antibiotics because none had been offered. He said that I was to be given them intravenously and that it was not helpful I had started my own. It is unfortunate this information was not communicated at pre assessment.

There was consternation at what pain relief I would be given, despite my full history being declared at pre assessment. It was like they were getting the information for the first time an hour pre surgery.

On my file, my meds were still incorrect. I told the anaesthetist but was not asked for the correct details. My address details were incorrect, the nurse would not allow me to correct the paperwork because ‘it’s not allowed’.

There seemed to be a degree of surprise that I took time to read the small print on the consent form. I specifically stated I did NOT want a pre med, but was wheeled in and given one without my consent. I was powerless to resist – outnumbered and crippled by terror.

Post surgery, I was brought medication to which I am allergic. When I flagged it up, one blamed the other for the mistake. I was so desperate to leave, I left without the surgeon’s discharge letter. I rang the next day to try and get it but was told by ward staff they were too busy to deal with it.

Two days post surgery I started feeling unwell with the same debilitating symptoms that had kept me ill for the year preceding. I immediately recognised the symptoms as relating to one of my chronic diseases that needs careful management.

On day 4 of feeling unwell I rang the number given on the booklet, to be told I should go to A and E. Why bother printing the number on a leaflet if no post op advice can be given? Since I had no desire to lie unattended on a trolley for 5 hours as per previous experience of A&E, I didn’t bother.

Instead I obtained the names of the drugs I had been administered. Cursory research indicates that at least 3 of the drugs administered are contra-indicated with 1 of my diseases. Pre-meds are not advised either with my history.

So thanks to the NHS I am now on sick leave again (having spent most of last year on sick leave) which is doing my career no favours. Experience has taught me that no one is ever accountable in the NHS, so all I can really do is post my story here as a warning to others.

Organisation learning to be considered: There is no point having a pre assessment by unqualified staff; neither is there a point having it if you fail to take on board the information given. If contra-indicated drugs are going to be administered anyway, save time and don’t bother with the pre assessment at all!

Doctors would do well to remember that valid patient consent is still a legal requirement.

There is no way of flagging up post op issues with the ward once you are discharged. All patients should be given a follow up appointment so that they can report issues, eg contra indications of GA. That way it can be held on the patient’s record. Patients should be given a list of the drugs administered when they are discharged so that they don’t have to try and track down the info when they are ill.

Plus points: the nurse who attended to me (apart from not allowing me to correct my personal data) was pleasant and kind. The nurse who did my pre op assessment, although out of her depth, was pleasant. The facilities are a lot better than other hospitals where I have had to sit on a chair both pre and post op, as no beds were available. PALS at Kings is extremely efficient and professional.


A&E and Acute Medical Unit

My Mother (79) was admitted to A&E on Monday night with symptoms of a TIA; she has a history of stroke and atrial fibrillation. She is in full control of her drugs which include Warfarin and is monitored closely.

Fortunately, when we arrived at 1. 00 am the department was not too busy and she received lots of attentive care, with many professionals asking for her story. Unfortunately, no bed could be found straight away but eventually she was transferred to a 6-bedded unit (an off-shoot of A&E I believe) where she also received excellent care. She was discharged during that afternoon and was asked to return the following morning at 8. 30 for the TIA clinic.

During our day in AMU, which started with blood tests and a consultation with a junior doctor, Mum was given a CT scan, an ultrasound scan and an MIR scan. The very kind junior doctor also came to find us in the scanning department to let us know that the Consultant was available to see to discuss her treatment and we were given lots of information on her condition, and an alternative protocol to prevent a repeat TIA. Clearly, Mum’s condition was unstable so devoting a whole day to get a complete picture and new treatment was most gratifying and prevented us worrying over several weeks, between appointments.

Without exception, everyone we came into contact with during the day, in every department, (including the Pharmacy and Costa’s! ! ) couldn’t have been more helpful or kind. Thank you.


Poor Care and communication

My mum has been in and out of the Manchester Royal for 4 and half years, each time has been nightmare.

They forget to give correct medication, do not pass on information to the relatives even after complaining to Pals. They have left her in her own poo, left her distressed and placed great pressure on myself. I’ve requested answers but never get them.

They make her sign forms when we have clearly told the hospital she must not sign forms unless a family member is there. There never seems to be anyone available, or if there is its is doing the drugs round and cannot speak to you. My mother was admitted again recently with dehydration and her nephrostomy was not draining. I arrived at the hospital this evening to find a doctor round her bed and was advised they had took mum down to radiology and changed her nephrostomy tube no one was informed she was having it done, so I wonder who supervised her signing forms? On getting back to the ward mums heart starting racing and they had to deal with it and do an ecg which showed it was still beating fast. I would never of forgive them if something had happened and I never got to see her. It is an absolute disgrace! Oh and last time she was in she started fitting for the 6th time, crash team were called etc etc. I asked if they would look into this to be told no as we are urology and don’t deal with things like this.

For godsake you are a hospital you’re meant to fix people not make them worse. The list is endless I could go on all night.


Stressed and starting to be ill Daughter!