My husband has dementia with Lewy bodies and his behaviour varies. I have been caring for him for 4 years and finding it very tiring at times. We had a crisis with him getting out of control and the social worker recommended respite care at Burkitt Nursing Home. I explained to him that it was only for 2 weeks. He did not settle and did some damage in the home. The social worker did not ring me about it until 5 days later, she said she was too busy. I visited him every day and did not like how he was treated. I took him out a week after he went in to give him a change and he walked round Asdas. I had a visit from a different social worker who said the home were happy to keep him longer but I said I would pick him up at the end of his two weeks. He could hardly walk to the car and we got him home where he collapsed. I thought he was sedated. Later I phone the doctor who said to call the after hours service who came and had him taken straight to hospital, Queens Medical Centre, Nottingham where they found he had a blood infection, bladder infection, dehydrated, bed sores and bruises and nearly died.
He was on a drip for several days and injections and survived. He was very weak and thin but gradually got better but still weak. The therapist said he did not think he would walk again which I thought was expecting him to do much too soon. After 5 weeks after an argument with the hospital social worker who said I would not cope, I have him at home. He has two support devices for walking but can now get upstairs and is much better. They prescribed Mirtazapine without telling me which I have not given to him. They said he was depressed, (he was fed up with being in hospital, and cried) I am paying privately for carers to wash and shower him. I am afraid I do not get on with social workers – what do they do? Do they ever follow up how patients are when they leave hospital? My husband is going to a day centre once a week, and has enjoyed a meal out today, his appetite is enormous and I hope he will gain his weight back.