Chemotherapy- Day Unit YPU

The final treatment of my chemotherapy I waited for 5 1/2 hours before being told that although my drugs had been ready, they weren’t brought up and had expired. They then informed me that I would not be able to have chemotherapy on that day. The pharmacy had not sent them up. They told me I would have to have it the next day but I was planning on returning home to see my mum and friends as I only transferred to Birmingham as I am a student.

I was very upset and the nurses were extremely understanding and helpful making sure that the pharmacy stayed open so my drugs could be made. I arrived at the hospital at 11am and left 11. 30pm. At my previous hospital in Kent I was in and out in 2 1/2 hours without fail. I would like to note that at every hospital I have attended it seems to me that the pharmacy are severely understaffed unable to cope with the high volume of patient demand.


Great care at Frenchay

I had a wide local excision of melanoma scar yesterday afternoon, right side of my abdomen, done by a Ms Mcardie (I think) at Frenchay Hospital in North Bristol,. She’s a lovely Irish sounding lady. All the surgical and day care staff treated me well and respectfully and kept me informed of everything that was going to happen.

I did ask about sentinel lymph node biopsy (SLNB) and was informed that at this stage (the original MM mole depth was 1. 2mm) they would await the results, but would not expect to be doing a SLNB. Not sure how big the scar will be, it is covered up with the dressing at the moment. I was advised that results will be discussed at the next clinic in 5 – 6 weeks. Hope by documenting the experience it may be helpful feedback to Ms Mcardie and Mr Thomas Cobley’s team at Frenchay.


Fantastic leukaemia care at Nottingham

Since i was sent to Nottingham City Hospital’s Fletcher ward in may 2005, the treatment was first class and the staff was brilliant in looking after me, from the top doctors, junior doctors to nurses to cleaners, they was brilliant and the top class treatment carried on to the day care and outpatients.

The staff are so caring and are great people thankyou guys! It is now 2010 and everytime i go, you know you are in safe hands – and the leukaemia is in its box locked up thanks to the staff.

You all know who you are, you are life savers every last one of you.


Gynae Care At Whiston Hospital

I’ve had to attend the Gynae Clinic several times over the past year or so and have had a couple of hysteroscopies for post menopausal bleeding. The clinics run like clockwork but at the same time the receptionist, nursing staff and consultants are so pleasant, kind and considerate that it doesn’t feel like a hospital experience at all.

One thing does concern me though about my most recent attendance for a hysteroscopy under GA, and that is about medical notes or absence of them.

Firstly, I advised the consultant at my clinic appointment that I was a newly diagnosed T2 diabetic on meds, I’ve also been treated at the same hospital for angioedema and anaphylactic shock and I watched the Consultant make notes in my case notes on those occasions.

Yet when my appointment came for the hysteroscopy I was phoned the day before and was told it had to be cancelled because they’d had emergencies. I was then asked to go in the following day at 11am.

When I got there, 5-6 other patients arrived after me and we all sat in the waiting room on very uncomfy chairs. Ward Manager then advised us they were short of beds and we’d have to all stay in the waiting room and basically wait until beds became available, and that our bloods and urine specimens would be done in the waiting room. She then went away and came back with a list of the order we were to go for surgery.

I was last on the list, which meant I’d been fasting from early morning that day and by my calculations from what the Ward Manager had said, I’d be lucky if I got down to theatre by 8pm if the surgeon was prepared to work that late! And I thought I’d probably have keeled over with hunger by then. I was anxious about the GA because of my history of anaphylaxis and with the diabetes on top, I was even more anxious and to be honest the bed situation seemed absurd. So I reminded the WM that I was diabetic as I understand diabetics are usually first on the list because of fasting and blood sugar levels, and that I didn’t think I could wait the whole day in the waiting room and also reminded her about the anaphylaxis to which she replied that there was nothing in my notes about either of those conditions.

I now really wonder what the point is of consultants and patients taking the time to exchange information and to write it down, if later on, that vital information is said to be not available in the notes when they get to the ward. Surely things like proneness to anaphylaxis and diabetes should be noted on the front of the casenotes where they can’t be missed.

In fact, wouldn’t it be useful if ALL diagnoses be listed at the front of the casenotes where they can be easily scanned with the eyes, and the details could be contained within the actual case notes in date order as usual?

I began to wonder whether they actually had the right notes or not as I’d seen the Consultant make the notes as I spoke them to her. I hate making a fuss but I was very uneasy about the fact that I was going for a GA and some important medical history was not available.

Apart from that everything else was fine and the porter, anaesthetists, consultant and theatre staff were brilliant but I would like to see the case note situation improved.


Where did the funding comer from?

I was referred to hospital by my GP back in December, after only one hour of my doctors visit the hospital called me and asked if I could make it in the next day. I was very pleased and surprised at the quick appointment as it was the Christmas period.

They wanted to check the mole on my face wasn’t malignant. I was reassured that it would not travel but asked if I would like to have the biopsy over the Christmas period. I decided against this and then waited until May for my appointment.

I was very pleased with how this went and was in and out in the day. The nurses were all very gentle and the surgeon did a great job with only a very small scar that is barely evident.

Before all of this, I had been having a problem with my finger, it had stated to bend and I could not straighten it naturally. I had had a pre-med in November and then heard nothing. One day I received a call saying that there was no funding for this procedure as it was not urgent. Then recently I got a call asking me to come in for another pre-med and I have now been told that they will go through with the operation. I am not sure what happened and where the funding has come from but glad that my finger will be sorted out.


Urology at Guy’s Hospital rocks!

I am a 41 year old female that would like to warmly thank the clinical staff in the Urology Department at Guy’s Hospital, London, for treating the problematic symptoms with my bladder of “urgency” and “frequency” which made my daily life increasingly difficult if not impossible. I had put off having the recommended procedures for my bladder to undergo a “urethral dilation” and “hydro distension” as it all looked very scary on the internet with the use of a rather “medieval looking” rigid cystoscope. I had been racked with terrible nerves on the day of the admission. Sure it was excruciating pain to spend a penny for a few days afterwards and waiting for the biopsy results was a particularly anxious period as I was assuming the worst. But look at the difference now some six weeks later. My bladder is almost back to normal function and there has been a considerable improvement in my bladder symptoms.

Particular thanks go to Mr Cahill, Mr Glass and Mr Bultitude who were all involved in getting my bladder back on track and had treated me with such compassion during the course of my treatment. The modern Urology Centre at Guy’s Hospital is bright, friendly and a real pleasure to visit as a patient. This is the only Urology Department I would ever visit should there be any recurrence of my symptoms. Hopefully in 20 years time or so.

Basically, Urology at Guy’s Hospital rocks!!!

Dodgy Bladder

Hernia operation

I was admitted to Furness General Hospital in Jan. 2011 for day surgery for a hernia. Following surgery, the surgeon advised me that he had unfortunately “nicked” my bladder and that I would need to wear a catheter for 10 days to allow the bladder to heal and that an Xray would be required before removal of the catheteter.

The surgeon was a locum who left the hospital the next day! I felt very worried about this and as an appointment was not received for Xray I telephoned that dept. but they did not know anything about me. I was passed between departments in an uncaring way.

Eventually,an appointment was arranged and a day bed was organised 14 days after the operation! Following xray, I was taken to the day ward. A little while later, the ward sister told me I would need to go home and return several days later keeping the catheter in place as the consultant had not received adequate notes from the consultant radiographer.

I complained bitterly as this meant another round trip of 28 miles not to mention the waste of a hospital bed for a day. The sister was very kind and took documents between both consultants allowing me to continue treatment on that day.

I must stress that the nursing staff were excellent!

In May 2011, I had to attend Lancaster A+ E as I had infectious matter pouring from one of the entry wounds due to an infection that had been introduced into the abdomen at the time of the operation! Not a pleasant experience.


Staff always have time for you

I have had multiple myeloma and continuously have visited the haematology department at Nottingham City Hospital for treatment. The best thing about my treatment was that all the staff are very welcoming, friendly and helpful. Most staff explained things very well. Sometimes very senior staff could have explained things better but usually delegated to nursing staff to do the explaining. I would like to especially thank the myeloma nurses and Dr Kathy Williams. They always have time to see you if you are feeling ill, usually on the same day, after clinic. However busy they are they still make time for you, that is throughout the clinic in day care, blood taking with either the myeloma nurses or the doctors. I would like to say thank you for that as well as the regular treatment.