A bad experience of endoscopy

I attended an endoscopy appointment, and was slotted onto the end of a list. My wife is a nurse and she had always advised me that i should have sedation. However when I got there all the staff without exception said that it was the normal practice not to have sedation. Although I said that I did not like needles the Dr said that I did not need it, just have the throat spray. I was then laid on the bed, on my side with the plastic guide strapped to my mouth. The following 10 minutes can only describe as the most terrifying experience of my entire life.

I started to gag and cough and as the Dr pushed the scope further down my throat my whole body was convulsing continually gagging and trying to vomit. Eventually I did vomit but as I was laying on my side the vomit stayed in my throat and therefore I could not breath I tried to get the Dr to stop, but all that happened was the nurse held me down saying that I had plenty of room to breathe. This was easy to say but at that stage I was gagging so much I could not see at all.

After what seem like a lifetime the Dr removed the scope. They made me stay where I was for a short while as I caught my breath, when I sat up they walked me into the recovery area, where I was left there while I overheard the staff saying that as I did not have the sedation, they could finish as soon as I had left.

By the time I met my wife the whole left side of my face was scarlet and my eye looked like I had a cricket ball in its place, 10 minutes later the white of my left eye was totally red, where I had obviously burst a blood vestle during the gagging, coughing etc. The following day I was off from work and where I have been fighting to breath, convulsing etc I ached from my fingers & jaw to my feet. My eye is still extremely tender and is still blood shot over the other side of my eye.

The whole experience has been awful and continues to wake me up in a panic. I am not one for complaining, but I feel that I have been grossly mistreated. I even woke up last Saturday and said to my wife that I feel like suing the hospital.


Poor communication with relatives in hospital.

My friend is currently in ward 11 Hull Royal Infirmary.

Whilst basic physical nursing care is satisfactory the nursing staff seem unable and reluctant to update us on the simplest of information in relation to her progress or otherwise.She is clearly not improving.

The nurses say they are unable to give any detail on medical progress.

Whilst this may be the case they have a duty of care to the patient’s relatives to keep them updated and should ensure that the medical staff are contacted and arrangements made for them to meet to discuss the plan of care and treatment.


Why do you have to see a nurse before you get a referral?

I hurt my shoulder in a fall and I am now waiting to see a specialist at Torbay.

However I have to say that I feel the DART process is an over-bureaucratic waste of my time and the health service’s precious resources.

Why do you have to see a nurse for blood test, body weight check, blood pressure etc before you can even ask for a referral? When you ring up to make an appointment with the specialist the DART team have to process you, why when with choose and book everything was done at the doctors on the day of your diagnosis?

I have not received any correspondence with Torbay as the DART team is based in Newton Abbot and apparently the communication is patchy between them. So I have to turn up at Torbay and hope I have an appointment. What a farce the NHS is becoming.

Mr Angry

Care and compassion shown to my father

I would just like to express my thanks for the care and compassion shown to my father on a recent trip to the QEII in Welwyn Garden City. Following a cardiac episode he was seen by he GP who referred him to the QEII. He has long standing chronic issues, as well as cancer.

He was triaged promptly and the medical and nursing staff were professional and supportive at all times during his whole stay. The young Irish nurse in the Clinical Decsion Unit was lovely and the young doctors and registrar treated my father with dignity and respect. They took time to explain what they were doing and kept us informed.

He is a colourful character and can be quite loud as he is deaf and has lost his hearing aid. Everyone took the time to listen to him and share a few words and support.

The only thing which was slightly jarring note was the radio which was on in the background until I turned if off. I was not clear who it was for and as my father is hard of hearing this made some communication difficult.

This is the third time the QEII have supported and saved my fathers life he is very thankful for thier continuing support and kindness. He hopes he won’t see them again anytime soon!

Please pass these comments to the whole team and our thanks for all the work they do to support people such as my father.

Thankful relative

Lack of communication from staff at Stepping Hill

My 54 year old father in law was admitted for the 1st time in May and has had 5 stays since, since then he had been diagnosed with rheumatoid, duodenitis, liver cirrhosis, heart failure.

He has visited various wards, meet various Doctors had every test in the hospital with not one result ever given, not one follow up appointment by any the Doctors after these quite severe diagnoses. He is currently on A15 fighting for his life after a week’s stay on Intensive Care, his lungs have begun to fail and he cannot breathe unaided, he cannot eat so is being fed by a drip directly into his main vein in his neck, as is all medication, as he is unable to swallow as he muscles are that weak, he can not walk/stand, has bedsores and lost 6 stone in 6 months, and the Doctors say nothing to us.

Due to what seems to us the appalling lack of care, compassion, urgency and communication in this hospital we have no clue what is wrong with and how to help.

And all this time he lies sedated and frightened with no faith in the professionals, no matter how many questions we ask, how loud we shout, who we speak to we get no answers.


Great care but problems with communication

My partner is type 1 diabetic. Due to his condition he had some nerve damage to the nerves in his left wrist. It was decided that he would be referred to day surgery at Rotherham Hospital for an operation to remove the nerves. Due to his condition he was advised to have a local anaesthetic so he did not have to starve as this can cause problems with his blood sugar levels. He arrived at the hospital and was admitted very quickly and efficiently. He was then asked to take a seat and wait. After several hours without food or drink he approached the nurse to see if he could have something as he was starting to have a drop in blood sugar level. The nurse stated that there was nothing in his notes to say that he was diabetic but took him to a side ward and gave him something to eat immediately. When he saw the surgeon he again mentioned his diabetes. The surgeon said there was nothing in his notes but he should have been first on his list. Although his treatment was excellent, I think this highlights real communication issues within the hospital.


Treatment of my disabled son

My Son is 19 years old and profoundly disabled. This is his first hospital admission to an adult ward, as up until now he has always been cared for in paediatrics.

Well all I can say is I’m not surprised people that people experience poor care – because when it comes to my son, the staff who’ve been in contact with him have not seemed to have a clue.

What a shock to the system from paediatrics. I usually have had faith in Southampton General Hospital but not now.

Resuscitation in A&E were fabulous but its been a slow decline from there to acute medical ward. I’ve been on the ward for 2 hours with my son, asked for suction machine over an hour ago but have still not received it.

There are of course a minority of excellent nurses who have shown him compassion, dignity and made me feel like he is worthy human being, but in our experience, they are a minority.


Despairing of the doctor at Montagu

I recently went to see a doctor at Montagu Hospital having been referred by my GP. I am showing all the signs of having ME/chronic fatigue syndrome and have had months of tests to eliminate other possible causes of my symptoms.

Because I am not very good at speaking to professionals about my ailments I had done some background reading on ME and printed out a page from the Action for ME website regarding symptoms, which I had annotated to help me to express my concerns and for the doctor to see the correlation. I am fully aware of the dangers of self-diagnosis and went with an open mind for a professional opinion and discussion.

After reading aloud the notes from my GP, the doctor spent the rest of the 10 minutes I spent with him focusing on my ‘tiredness’. I was given little opportunity to explain that the ‘tiredness’ was so much more – I showed him the notes I’d made. He glanced through them and effectively dismissed them with what was a poorly disguised snort of ridicule. He proceeded to explain that ME was a condition found only in young people who’d had glandular fever, and one from which they all recovered. This does not agree at all with the information I’d had from the various ME groups and societies.

He then decided to do some more tests, which even my GP considers irrelevant.

I left feeling confused, angry, upset, despairing. I felt as though I’d been laughed at and not taken seriously. I will not be returning to that doctor for more of this and instead have taken advice from Action for ME and am working with my GP towards a diagnosis.


Painful procedures at Good Hope

In early Jan I had endoscopy and colonoscopy under “sedation” at Good Hope. I too entered the treatment room where the doctor was just sat at a desk with his back to me while the nurses sorted out everything else.

The sedation had very little effect and the endoscopy was traumatic but just about bearable.

The colonoscopy was incredibly painful – the nurses were holding me down and I was gripping the side of the trolley and shouting in pain.

Afterwards I was told that blood test and biopsy results would be sent to my GP within 10-12 days, but nearly 4 weeks later my GP has heard nothing and now I’ve been sent for a bone density scan and no-one has told me why.

The staff should realise that communication is incredibly important in these circumstances and I’m really frustrated that no-one has contacted me to tell me the results.

Catherine Lewis

Poor communication and lack of consideration

My husband received a letter to attend the orthopedic clinic and a week before the appointment had a recorded phone reminder to attend the orthopedic clinic.

Yesterday he attended this clinic and was told he should have gone to the hand clinic which is 15-20 minutes walk away. On getting there he was told that he should have gone for an xray, which was another 20 minute walk away.

When he returned to the hand clinic it was closed and in darkness. He found a buzzer and was let in by a member of staff.

This is not a positive or inclusive way to treat patients who may be in pain and anxious. This is typical of the NGH, lack of pathways or joined up treatment. In my experience the Royal Hallamshire can manage to be efficient and inclusive so why can’t NGH?