Chemotherapy- Day Unit YPU

The final treatment of my chemotherapy I waited for 5 1/2 hours before being told that although my drugs had been ready, they weren’t brought up and had expired. They then informed me that I would not be able to have chemotherapy on that day. The pharmacy had not sent them up. They told me I would have to have it the next day but I was planning on returning home to see my mum and friends as I only transferred to Birmingham as I am a student.

I was very upset and the nurses were extremely understanding and helpful making sure that the pharmacy stayed open so my drugs could be made. I arrived at the hospital at 11am and left 11. 30pm. At my previous hospital in Kent I was in and out in 2 1/2 hours without fail. I would like to note that at every hospital I have attended it seems to me that the pharmacy are severely understaffed unable to cope with the high volume of patient demand.


Lack of care for my dying brother

My brother was diagnosed with a brain tumour and was taken into the Oncology ward at the Churchill as it became obvious that he was reaching the end of his very limited life expectancy.

The nursing care I saw was dreadful. Care was not involved – my brother, who could no longer co-ordinate his hands, was given food covered with cling film, that he could not remove from the plate, without dropping all the food to the floor.

His pyjamas were not changed until family members rooted out nurses from their almost continual chat gaggle by the nurses station (and yes, it was chatting not patient matters they were talking about).

My brother wasn’t washed or shaved. Bedlinen stained with faeces was left on the floor by his bed all day. His jeans stained with faeces were left in his locker. He was not fed and my sister in law – only 8 weeks after finishing chemotherapy – had to spend most of every day with my brother to ensure he was cared for.

Eventually my brother went home, as my sister-in-law could not bear the indifference with which the nurses seemed to treat a dying man.

And why wasn’t I there? Because I was having an emergency life-saving operation at a hospital in the same trust.

But this is not the only time some of the Oncology nurses have treated patients with disdain. Earlier this year my friend’s father was in the same ward and lo and behold he was treated in exactly the same way. Staff only intervened when pushed by family.


Shocked by my brother’s care before he died

My brother was seriously ill for over three months before being diagnosed with lymphoma.

His body was covered in weeping ulcerations that were particularly deep around his groin area. He was virtually unable to walk and bedridden most of the time.

On one particular visit to Ward 23 I was shocked to find his commode had been removed several days earlier and he was required to use the wards communal toilet. This exposed his wounds to any infection. He was told someone else needed the use of the commode more than himself.

I also found that he had resorted to dressing his own wounds himself because some of the nurses seemed incapable of administering treatment to his ulcers for the correct amount of time, resulting in frequent burning to his ulcers. It was later discovered they were using the wrong type of treatments anyway.

He had also taken to showering himself to keep his wounds dry and the water at the right temperature as some nurses seemed incapable of either. After finally receiving the correct diagnoses he began chemotherapy two weeks ago on a different ward where the nurses were outstanding and a credit to their profession.

However, after initially responding well to the first treatment he contracted MRSA in his lungs. I spent this weekend watching him die a horrible slow death, all thanks to an unclean hospital.


Treatment for a blood infection after chemotherapy

In 2005 I was told I had ovarian cancer, which was progressive. I am still having chemo, this is my 4th course so I have had a lot of blood taken.

Recently I had to go into hospital for a blood infection, my stay in hospital was made much better by the care I was given by nursing staff which was very good.

The phlebotomy service I can only say in 7 years has been excellent both in hospital and at home. They are very friendly and make you feel special. In 7 years I have seen a Macmillan nurse just once. If I need a district nurse I pick up the phone and one will come, fortunately I am still pretty active and can do things for myself.


Stage 3 ovarian cancer diagnosis

Since my diagnosis early in January 2010 the more I read and learn about ovarian cancer particularly stage 3, the more I understand that I fit into the classic 50 + female patient for this disease. My concern is that it took 3 months with a young female GP to reach this diagnosis, having wasted what I felt was valuable time investigating indigestion and looking for a gastric ulcer. I would like to see more training for GP’s to recognise this disease and education of the disease itself. I would furthermore like all ladies of 40 + to learn about this disease which is called on the Cancer Research site “the silent killer” in that 60% of patients are not diagnosed until the disease has advanced and become metastatic. The treatment is chemotherapy followed by major surgery not just on female reproductive tissues, followed by more chemotherapy and a 42% chance of surviving beyond 5 years with constant surveillance. I think lady’s would do well to report to their GP on so much as a burp insist on a tumour marker blood test for CA125. I am sure this would be a cheaper investigation in the long run for GP surgeries.

In my case, having attended A & E one evening after collapsing on the pavement, and attended the GP for follow up the next week, and subsequent returns “I still feel unwell” to the GP, I felt all I needed was for someone to make an inspired guess. It is hard to learn and accept the role of patient victim, and that being positive is the key to coming to terms with this diagnosis (having never smoked or taken drugs, therefore not asked for lung or throat cancer). I don’t feel I deserve ovarian stage 3 cancer, and I certainly don’t deserve to hear political questions and comments made about funding the NHS in its treatment and care of cancer (non deserving) patients. If the tax payer thinks there are to be savings on these issues, then I think we should look to which cancers deserve treatments and which should simply be offered palliative medications especially as people are continually being urged to live healthily i.e. no smoking or drugs or alcohol abuse.

mother duck

I am awaiting second round of chemotherapy, but there are no beds

I am a cancer patient awaiting a second round of chemotherapy. I have been told from my doctor that it is medically essential that I am treated on exactly this date, as it is a certain amount of days after my previous treatment. However, I have been told that there is no available bed therefore I am having to wait until a bed becomes available.

The issue as I understand it is that the cancer ward cannot ‘ringfence’ the bed and has no way of guaranteeing a bed, despite it being medically essential that I receive treatment today.

Don’t want to give it

I look forward with hope

I had my operation for cancer of the oesophagus on 2nd February which went very well and I made a speedy recovery. Thanks to the very good nursing and surgical teams around me which excellent advice and support after the operation. I had my last visit with the surgeon on 17th Dec 09. A week later I was admitted with confusion and was found to have lesions on the brain. I was sent back to oncology for tests and scans have since had radiography and chemotherapy in order to reduce the lesions in the brain, fingers crossed I look forward with hope.

All through the treatment everybody has been excellent, however the ontology clinics have been a little slow and I’m not sure how they can speed it up. I’m sure they have a system and I don’t wish them to speed things along and make mistakes. Having said this when you see the doctors they are very good in their explanation of your case and treatment. The City Hospital is very good and seems organised and clam.


More warning for my mum’s cancelled appointment

My mum is going through chemotherapy treatment at the moment at Nottingham City as an out patient. So far she has had one treatment.

About three weeks ago she fell and broke her hip and was taken to Queens Medical Nottingham. They kept her in until she was on her feet again. The staff there were marvellous, they kept in touch with Nottingham City because she was due to have another chemo treatment but they cancelled this for another week which was alright because she would be a bit stronger by then.

However she had an appointment at Nottingham City on Friday to be there at 12.40pm. She got there just on time bearing in mind she has to use a zimmer frame at the moment and rely on people to take her because my dad can’t drive, only to be kept waiting, then told it was cancelled.

It would have took 2 minutes for someone to phone and cancel. As you can see I’m not very happy. My mum is 70 years old and she was shattered when she got home at about 5.00 pm because she had to wait for someone to fetch her


Good support from Macmillan Palliative Care Team

I was referred to Kevin Moore of the Macmillan Palliative Care Team by District Nurse Chris Love. I have “Sezary Syndrome”.

Without his caring, informative and friendly advice and assistance, I would not have been able to complete and return the Government Benefit claim forms, and return them without much delay and within the time limits.

I received my initial chemotherapy at Nottingham City Hospital at the beginning of October 2012, and Kevin made his first visit to see me at the end of October after my second batch of chemotherapy, and after the various government forms had been received.

He has since visited me twice and put his considerable expertise to good use.

Many thanks to Kevin and the Macmillan Palliative Care Team at both St. Andrews Hospice and the APB pont office in Grimsby.


Thank you for my life

I wish to thank Mr Khetan of Doncaster Royal Infirmary, and Professor Ali Majeed of Royal Hallamshire and Dr Simon Pledge of Western Park for saving my life, for the removal of bowel cancer, and chemotherapy, also for my liver resection which had spread from the bowel cancer.

With out these people and the care that i recieved i would not be here now. i am now undergoing constant monitoring with ct and mri scans.