Disappointing care pathway at William Harvey Hospital A&E

My wife was diagnosed with TTP (Thrombotic thrombocytopenic purpura) sometime ago. Which is a very rare blood disorder, since then she has to be careful of contracting an infection as this could flare up the TTP. We are both very cautious of this fact. So this affects our judgment of care pathways.

My wife sometimes suffers with abscesses, and after three to four days an abscess in her groin was starting to cause considerable discomfort.

A couple of days ago, at 4.30 pm, I took my wife to Buckland Hospital and after a very short wait she was seen by one of the nurses. The nurse tested my wife’s blood pressure, heart etc then took a look at the abscess. After sometime the nurse consulted with a gynaecologist at WWH (William Harvey Hospital) in Ashford Kent. He requested my wife to go over to Ashford to see him. We were given a letter and told to hand this into the A&E reception. We then travelled the 30 min journey to WWH.

At 5.30pm, we arrived at WWH A&E , and were met with a waiting room full past capacity. With people waiting in the corridors. We handed the letter into reception.

At 8.45pm, my wife was seen by the triage nurse. She tested my wife’s blood pressure, heart etc. Then informed my wife that she would let the gynaecologist know that she was there. We both heard the telephone conversation between the nurse and gynaecologist. He informed the nurse that he was now going home. The nurse then informed us that the gynaecologist taking over will see my wife. We were then told to go back to the waiting room until we were called.

At 10pm, I started asking the receptionist when my wife would be seen. Soon after she was seen by the gynaecologist. At this point I became very concerned as the gynaecologist looked like she had not slept for a week. During my wife’s consultation we informed the consultant of my wife’s TTP and reminded her that my wife takes daily aspirin. After a short while the gynaecologist prescribed my wife some antibiotics and told her to take ibuprofen for the pain. I informed the gynaecologist that my wife takes the daily aspirin and that taking ibuprofen isn’t a good idea. She agreed, and then moments later again suggested ibuprofen for the pain.

We left WHH at around 11pm.

During this experience we saw staff that looked like walking zombies, patients that had been into A&E, discharged, and then returning. Dirty clinical areas (Blood stains on the hospital beds). Frustrated staff, and patients.

This care pathway of around 6.5 hours could have been a better experience to say the least. Not only was this exercise a waste of public money, and time. It was also frustrating for the staff and the patients. At this point I don’t blame the staff at A&E as they all looked rushed off their feet. The staff seem to do all they can to make it work, and that’s the problem. Based on our experience, this hospital gets by on the willingness of front line staff. The managers and commissioners need to look at this situation before our A&Es in East Kent hit crisis.


Russells Hall Hospital

Earlier this year I was diagnosed with ITP (Idiopathic thrombocytopenic purpura), a rare blood disorder where your immune system starts to destroy the platelets in your blood.

A blood sample was taken on a Monday, the next day I was seen by a consultant who explained that I had a very low platelet count. I was then given many further tests – blood samples, an X ray, a bone marrow sample, etc – and by Wednesday The diagnosis was made and treatment started.

My condition is now, hopefully, under control and I cannot speak too highly of the staff of the haematology department who have dealt with me. Admittedly, a lot of time is spent in waiting, but this is a small price to pay for such excellent service.

I have not found parking a problem, though probably it depends on the time of day of your appointment.


Break down in communications

I am writing about my treatment at Rotherham District General Hospital in the Orthopaedic/pre-op wards. I had treatment on my knee joint.

The information given by the sister in the pre-operation clinic was excellent.

However, I felt annoyed at being sent to the day surgery, just to be told that they wouldn’t accept me because of a blood disorder. I though this might happen and so had told the consultant, who wouldn’t accept it – and set up the day surgery anyway. I think that I should have been listened to.

I would like to thank the nursing staff at the day surgery, as they understood how I felt, because they have to cope with people being sent to them unnecessarily. I would also like to thank the nursing staff and the sister in the pre-op clinic.


Good medical care but understaffed at Aintree

I was a patient on ward 11 at the University Hospital Aintree in Liverpool for the treatment of a blood disorder. I was given a good standard of care from the medical staff – the doctors took the time to talk with me and answer any questions which I had in order to help put me at ease.

The only improvement would be to employ more staff on the wards, as there were never enough nurses on shift at a time.


Waiting to see if I have haemochromatosis

Some months ago I asked what my blood group was. I was told that ‘you don’t need to know’.

My two sisters have Haemochromatosis. I asked to be checked for it. First blood test results ‘were a bit high’ (no figure/further information was given) so I was referred to the hospital, to the department that the computer picked.

Wrong department, but Doctor would not change it. Appointment on Monday in 5 weeks time. Letter from hospital the Saturday before (lucky it got here) to see General Med instead.

He told me a reading of 600+ was nothing – he’d seen 3,000! Normal is 15-200. More blood tests, appointment ‘wait and watch – 3 months’. Blood test results in 3 weeks.

Phoned my Doctor after 5 weeks. No results yet and ‘don’t bother’ the Hospital Doc – wait till next visit in June.

Haemochromatosis is a blood disorder (with some serious side effects the longer its not treated). Why was I sent to General Med? Why not Haematology straight away?


Thanks to kngsmill hospital

my wife suffers from Glanzmann’s thrombasthenia, which is a rare blood disorder. As a result of this condition she has been treated in many departments at Kingsmill. and at many hospitals throughout the midlands and beyond. When we go to Kingsmill we go with confidence. The haematology dept have looked after her for the last twenty years, what a fantastic caring team, from doctors to receptionists. A special thanks to Dr Elizabeth Logan, who retired recently, her dedication was beyond belief. I would also like to thank Mr. Watts’ team in the maxillofacial dept, from where my wife has just returned from a minor operation but again great job we cannot thank them enough.


Very good care at Nottingham City hospital

Last month I was a patient at the Nottingham City hospital for the treatment of a blood disorder. The standard of care I received whilst there was very good. The kindness and understanding shown by all staff towards me was great. I felt that I was treated with the utmost care and respect at all times.

Thank you to all staff who I saw during my stay.


Aylesford Unit

During several lengthy stays I have spent longer than I would have liked as an in-patient in Warwick Hospital during the period August 2012-Feb 2013. I currently, on a monthly basis, attend the Aylesford Unit for medication and check-ups. You will appreciate I know the hospital well and have been treated and cared for by a great number of staff at all levels. My experiences, apart from the fact I was ill, have resulted in huge admiration, satisfaction and grateful thanks for the wonderful care I recieved. The particular areas with with which I was concered were, initially, Mary Ward and all the respiratory services they provided, Farries Ward after I was diagnosed as having a blood disorder subsequently diagnosed as Acute Myeloid Leukemia, and the Aylesford Unit where I currently attend daily for 7 days every month for treatment. My admiration for, and appreciation of, the treatment recieved knows no bounds. I doubt if it could have been better. It gives me great pleasure to make these comments in recognition of the dedication of thos individuals with whom I came into contact- consultants, doctors, nurses at all levels and health care assistants, porters, ancillary staff, particularly at a difficult time for the NHS.

William Cook

Pharmacy Department , Royal Derby Hospital

I would like to pay tribute to the work of the Pharmacy Department at the R.D.H. Especially the lead Pharmacist. They and my Consultant liaised together and went to great lengths to research and obtain funding for treatment of a complication arising from my rare blood disorder. Few are aware of the “behind the scenes ” work done by professionals like these and hence they tend to receive less praise. Without such departments and their staff the standard of treatments and care that patients receive would be greatly diminished.