My husband has dementia with Lewy bodies and his behaviour varies. I have been caring for him for 4 years and finding it very tiring at times. We had a crisis with him getting out of control and the social worker recommended respite care at Burkitt Nursing Home. I explained to him that it was only for 2 weeks. He did not settle and did some damage in the home. The social worker did not ring me about it until 5 days later, she said she was too busy. I visited him every day and did not like how he was treated. I took him out a week after he went in to give him a change and he walked round Asdas. I had a visit from a different social worker who said the home were happy to keep him longer but I said I would pick him up at the end of his two weeks. He could hardly walk to the car and we got him home where he collapsed. I thought he was sedated. Later I phone the doctor who said to call the after hours service who came and had him taken straight to hospital, Queens Medical Centre, Nottingham where they found he had a blood infection, bladder infection, dehydrated, bed sores and bruises and nearly died.
He was on a drip for several days and injections and survived. He was very weak and thin but gradually got better but still weak. The therapist said he did not think he would walk again which I thought was expecting him to do much too soon. After 5 weeks after an argument with the hospital social worker who said I would not cope, I have him at home. He has two support devices for walking but can now get upstairs and is much better. They prescribed Mirtazapine without telling me which I have not given to him. They said he was depressed, (he was fed up with being in hospital, and cried) I am paying privately for carers to wash and shower him. I am afraid I do not get on with social workers – what do they do? Do they ever follow up how patients are when they leave hospital? My husband is going to a day centre once a week, and has enjoyed a meal out today, his appetite is enormous and I hope he will gain his weight back.
I would like to take this opportunity to comment on the care my partner has received from the staff at the QMC. He was transferred via air ambulance just over 3 years ago after a near fatal crash.
The one thing I am forever thankful for is that he was taken to the QMC at Nottingham. He was very poorly and the AICU unit staff was fantastic.
However his recovery was a long term journey culminating in his discharge today.
I would like to highlight the dedication, skill and amazing care we have experienced over the three years. Mr Forward, our orthopeadic consultant, worked on my partner from the time he was admitted and he has been amazing. He has explained everything to us clearly and honestly but with compassion. We have had some scary times but Mr Forward has always been supportive. He came into hospital on his days off and was always available to discuss his care.
My partner was moved onto ward F19 (now ward C5) and all the staff on the ward were wonderful. They fully involved me in his care, allowed me to be with him out of visiting times when very poorly, encouraged me to help with personal care duties and always treated us with respect and kindness. The staff on C5 and Mr Forward gave my partner his life back and we will never be able to express how extremely grateful we both are.
I wanted to share our experiences so that these wonderful professionals are recognised for the differences they make.
So thank you for everything.
We were on holiday when my mum took ill and we had to call 999.
We cannot thank enough the people who delivered care to our mum so quickly, from the staff in A/E to Ward D56 and then onto City Hospital. Diagnosis was so quick and treatment delivered with such care and compassion at a time of great stress for us as a family.
We are eternally grateful.
I wanted to say how impressed I was with the care and treatment I received whilst attending the treatment centre at QMC Nottingham. I was receiving pain relieving injections for my painful back and I was shown such kindness and respect by all staff. The consultant was so approachable and appeared concerned and interested in relieving my pain.
They were running late but they did apologise and informed me why which was good. I would recommend the treatment centre to others. Well done to all the staff.
I have accompanied my stepmother, who is in her 80s, 3 referrals times to the cataract clinic at Queen’s Medical Centre before she was finally put on the operation list. I am pleased to say she has now had her op and did well.The journey can now be told since until the op had been done I feared that right until the last minute this opportunity would be denied, and also should we complain she might then be taken off the list.
Referral 1, she had had a recent small stroke so was discharged since reasonably ops are not done until the person has been well for 6 months.
Summary: I believe that staff are told to ration surgery even though patients are in NICE guidelines because the member of staff who pushed in to a consultation to say’ she had her 5 for the day’ seemed to indicate that a target of max 5 from the clinic was expected and no more. The patient felt manipulated by the staff who, by asking if she could cope, discharged her. To me this seemed to be a way to get elderly patients to say they can cope. Turning around to say relatives are putting pressure on you to have an operation is despicable.
Referral 2. March 2011. The cataract clinic had then changed to a nurse led clinic, tests proved she was within the NICE guidelines for surgery, but she was discharged. How this was done – she was being tested by the optometrist and a person came into the room, who talked across us and said she had ‘her 5 for the day’. I understood this to be a number of patients for surgery. My step mother was asked since she no longer drove a car it was not vital that she have the operation although she came within the guidelines, ‘could she manage’ with distance glasses for going out and a magnifying glass for reading. She had already said she could not enjoy the TV or paper but as one of the generation who ‘managed’ through the war, she said she thought she could, hence a quick discharge.
Referral 3 September 2011. This had been discussed carefully by her GP with us both since there was now a personal safety issue and like other cataract patients she was unable to distinguish water on the worktop where there were electric leads to kettle.The GP marked the referral as urgent; but since we have ‘choose and Book, which I do not think takes into account that she had to wait for several weeks for clinic. Off we went again cataract still within guidelines and patient unable to see TV or paper; so we waited for it again ‘can you cope’? At this point my stepmother was confused, she knew what the GP had said and this was important, and that she really could not cope. So I stepped in and said in the GP letter you will see in his opinion this is a safety issue. I thought that would stop what I felt was pressure to fall out of line but no the optimetrist turned to my step mother and said that my stepmothers relatives we pressurising her to have this operation. I found this comment totally out of line, but knew I should not loose my cool and ensure that she was put on this op list. She then had to wait 18 weeks since the date of referral to have her op date, then unfortunately she had a chest infection, so had another date 4 weeks later.
I attend the diabetic clinic at the QMC as it is an ongoing problem. The best thing about my treatment is the consultant who is knowledgeable, patient and helpful. I think the parking could be better though. I would like to thank Peter for all his help.
I was admitted to QMC for a pelvic floor repair. I went into C31 on the 10th march and was discharged on 17th. I must say everything in that ward was very good. Staff were kind and caring. Cleaning on the ward was excellent as the toilets and shower rooms were cleaned to a very high standard. Certain cleaning items (wipes etc) were in there as patients could keep up the cleaning standards. I was really impressed with C31. However, I had to go back in on the 19th and stayed in B3 ward over night. Staff there were kind and caring. It as fairly clean there but the toilets and shower rooms were not very clean. It was nothing like the standards of C31! My opinion is if one ward has set a good standard, surely the others can.
I would like to say that after suffering from a severe bowel condition for 15 years, that left me housebound, I was extremely pleased to finally be given a diagnosis from QMC which now has me on the correct medication and I am able to finally live my life!
If only my GP had been as concerned about my well being. Then I wouldn’t have been fobbed off with the wrong medication for 15 years. Maybe GPs should listen to their patients’ concerns and then cases like mine wouldn’t happen.
The consultants at the QMC Treatment centre are amazing.
In April I attended the ENT department at QMC in Nottingham. The best bits were that the doctors explained would happen and answered any questions that I had. However, there was no clear answer on what would happen after. I later found out that they need you on the ward for at least four hours on return from operation. But when I asked on return they did not say this! I then overheard another nurse say this to someone else! I asked and they conformed this. But when my family who came after the operation asked they did not tell them. It would be at least four hours and maybe more! JUST TELL US!!!!!!
I attended the QMC’s Spinal Clinic due to recurrent lower back pain and leg pain. I have been suffering intermittent moderate to serious pain for 18 months, and have a longer standing history of difficulties with my back.
I attended an appointment with a surgeon; the first thing they told me was that there was nothing wrong with me, that I had a perfectly healthy spine. I was very surprised, as the MRI they based this opinion had been seen by a radiologist who had commented on possible wear to the vertebrae and compression of the spinal canal. I became very distressed: I have severe depression, which I am being treated for psychologically and psychiatrically. The surgeon became agitated with my distress, and asked me to decide which was worse, my back or leg pain; I felt pressured and answered my leg pain. They then asked me if I was being treated for any other health issues, to which I replied depression. They prescribed facet joint injections and then it felt like I was ushered out of their office. I was very confused; how could two experts opinions vary so widely? and if there really was nothing wrong with my back, why did I experience so much pain?
I asked to speak the surgeon again, and they told me I had fibromyalgia and could ‘research it on the internet’. No further explanations or diagnoses were attempted. None of the normal assessment criteria for fibromyalgia were performed, and most crucially, an in-depth knowledge of the patient’s medical history is required, which this surgeon clearly did not possess as they had to ask me about other treatments I was having.
I believe the diagnoses of fibromyalgia was given purely on the basis of my having depression, and as such the surgeon’s treatment of me was fundamentally determined by my mental health difficulties. I did not feel this treatment of me was adequate, and the whole experience left me extremely distressed and disillusioned with the NHS